Thanks for your patience during our recent outage at scalar.usc.edu. While Scalar content is loading normally now, saving is still slow, and Scalar's 'additional metadata' features have been disabled, which may interfere with features like timelines and maps that depend on metadata. This also means that saving a page or media item will remove its additional metadata. If this occurs, you can use the 'All versions' link at the bottom of the page to restore the earlier version. We are continuing to troubleshoot, and will provide further updates as needed. Note that this only affects Scalar projects at scalar.usc.edu, and not those hosted elsewhere.
Learning Data Ethics for Open Data SharingMain MenuAbout This ProjectTable of ContentsIntroduction to this OER, and list of topicsIntroduction to Data EthicsEffects of Good/Bad Data EthicsIntroduction to Data SharingWhat Could You Share?Journal and Funder MandatesFAIR Data SharingRestricted Access in FAIR SharingWhat Goes Into a Data Repository Record?Introduction to Data CurationCuration Workflows and ChecklistsIRB Applications and Data Management PlansInformed ConsentData Use AgreementsRisk Assessment and De-identificationMachine Learning and Big Data ResearchLynnee Argabright5e34677fb40215fff81dbaad4ee2c305e4977a8e
If you haven’t already, play Level 7 in the League of Data game: https://lod.sshopencloud.eu/LodGame/ It helps you think about what information is sensitive. Source: SSHOC. (2020). Data Publication Challenge [video game]. Social Sciences and Humanities Open Cloud (SSHOC) League of Data (LOD). https://lod.sshopencloud.eu/ --------------------------
Personally identifiable information (PII) are references, or variables, in data that can disclose a person’s identity. These can be either direct identifiers about a person, such as name or social security number, or indirect references, which are characteristics like occupation or salary that when put together can make an individual unique.
Certain direct identifiers, given what sort of data you’re working with, must be protected by law. HIPAA and FERPA are federal laws regulating the collection and exchange of health and student information. These regulations specify particular direct identifiers, and certain requirements that must be followed for proper use and disclosure of them.
More examples of personal identifiers (including those that are HIPAA and FERPA specific) are listed in the “NC State IRB Guidance: Identifiable Data Sets” document on NC State's Research Administration and Compliance website.
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12022-03-04T11:11:39-08:00Lynnee Argabright5e34677fb40215fff81dbaad4ee2c305e4977a8eTable of ContentsLynnee Argabright18Introduction to this OER, and list of topicsplain11361612022-10-31T20:50:51-07:00Lynnee Argabright5e34677fb40215fff81dbaad4ee2c305e4977a8e