HOW WE MAKE IT: Disability Justice, Autoimmunity, Community

An Inventory of Joy

This video trailer documents the process for Inventory of Joy, a movement and film project by Megan Moodie and Cynthia Ling Lee. Originally, Megan, a former dancer, invited Cynthia, a professional choreographer, to help shape movement for a video aimed at demonstrating L-dopa’s effectiveness in treating dystonia associated with Ehlers-Danlos Syndrome. Megan has hypermobile Ehlers-Danlos Syndrome and hemispheric symptoms of dystonia – spasms, tremor, and paralysis that occur mostly on her left side. Cynthia is a COVID-19 long-hauler whose profound bodily shifts have led her to reimagine dance. Their project has evolved into the practice of exploratory duets between mover and witness, illustrating how the pursuit of “evidence” informed by dance’s embodied epistemologies provides ways to better understand – not cure – one’s disability. In foregrounding the emergent, interdependent qualities of “the body,” it stands as a crip queer feminist challenge to normative medical regimes of image-making, the elicitation of symptom etiology, and diagnosis. 




 

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